Tuesday, November 28, 2017

Your Face



This is the face of an uninsured active voter in your area. This face has epilepsy and uncontrolled seizures that could kill her. This is the face of a daughter, sister, friend, and lover of the Lord.  This face has tenacity, compassion, and a servants heart.  This is the face of a future counselor, missionary, and world changer. This face has a name, has a voice, and will not go unanswered. #healthinsurance4emily #epilepsy









 List of Senators and Representatives;

Vicki Hartzler 1-220-225-2876 For Vicky, I went to her website and typed “email” in search bar and filled out form

Donna Pfautsch 1-573-751-9766 Donna.Pfautsch@house.mo.gov

Roy Blunt 1-202-224-5721
Blunt, website and then contact is under the drop down menu, fill out form.


Claire McCaskell (has an office in KC at 4141 Penn Ave, KC, Mo)  1-816-421-1639  or her DC number is 1-202-224-6154 senator@mccaskill.senate.gov

Friday, November 24, 2017

Born 2 Fight Built 2 Love




The darling dot & I passed a billboard promoting a new kids movie with the tag lines "Born to fight, Built to Love".  I asked her to write that in my journal because I felt like that is how God designed us as his warriors in the world against darkness that we would be His light & love.  I got a little preachy to say the least in the car.

She listened to me rattle on and then asked if I wanted to know what she thought.  Of, course, darling dot.  She said simply this; "I know God is wasn't born but He is the ultimate fighter that loves us enough to fight for us".  Yeah, she took those words to a whole other level, right?  She made it personal but the words aren't about us but our Heavenly Fathers capacity to love us each so much that He fights daily for us.  That's powerful coming from the darling dot considering what she has faces; epilepsy, uncontrolled seizures, and uncertainty.  Yet, this girl knows her Heavenly fights for her, has premise in her life, and loves her majestically.

This morning I woke up early birdy not to shop but because I felt God whispering to me to wake up, spend some time in me, and listen.  I trooped downstairs, journaled, & then listened to Him. I feel Him urging me to "trust in the moment, hasten hurry and reap joy. Emily is my adoration and Dale is my splendor take care of them, Sherry, delight in their joy for they are my truth and light to you through me". 

What a wondrous blessing from my Heavenly Father that He has it all under control; my fears, my frets, and my worries.  That He is fighting for me and wants me to reap His joy in my children.  Today, we are headed into KC to see if we can win a Blick bag full of art supplies. We were just going to hunker in after Thanksgiving but Dale saw the postcard and wants to try. I love that!  He is imaging how great all the supplies could be for him & for our family to use in The Artroom for art classes & to take on our journeys to South Dakota.  He actually inspired both his sister and dad to wake up this morning and go with us because 4 is better than 2.

There it is, God's light and definition for my life 4 is better than 2.  Not just for free giveaways but in my lifetime.  God graces me with 3 others that love me in a remarkable way.   May He grace you today through your kids, family, and friends.  That His love shine through them that you know what a fighter He is. 

Peace be with you- Sherry

Tuesday, November 21, 2017

To Whom It May Concern

                                                                                                              

To Whom It May Concern;

We are reaching out to you to help get Emily M. Snider health care insurance via the State of Missouri.  Emily is 24 year old, a college student, and primary caregiver to her mom who has cancer.

Emily attended Fontbonne University and her freshman year had a seizure in her Algebra class.  She was transported to a nearby hospital because during the seizure she stopped breathing and could not be resuscitated.  In the ER she was resuscitated and by herself with no family and no idea why she was there.  Her seizures have continued with frequency since 2014. In 2016 she came home from college to care for her mom who has cancer.  It was her hope in returning home that she would be able to get the seizures under control.

In September 2017 she was officially diagnosed with epilepsy by Dr. Hedges at the Kansas City Neurology Assoc LLC.  She has no health care insurance and her family has been paying for her medical care.  Her seizures are not controlled, she stops breathing during each for at least 10 minutes before she is resuscitated.  She takes meds to control her seizures but they aren't keeping her seizure free. She is unable to drive, can not work, and has to live at home in order to be monitored and keep her safe when she has a seizure.

Her current neurologist, Dr. Hedges, wants to refer her to a epilepsy specialist in neurology.  She believes because Emily is young she would be a good candidate for brain surgery.  This requires Emily to see a specialist in epilepsy to get started.  The specialists are too expensive for her family to pay and Emily needs health care insurance because of her epilepsy. The Snider family looked into buying health insurance for Emily but because of her epilepsy diagnosis it is too expensive for them to afford.

Her family applied on September 25, 2017 and have been told her case is "in process".  They have been told it can take up to three months to hear back from the State of Missouri if she has been approved or declined.  She can not wait any longer.  She has had three seizures within the past two months that could have killed her.  Imagine, your child, dropping to the floor, seizing and they stop breathing. Or coming home from chemo and finding your child seizing.  Both these are the Snider families reality.

We are writing in hopes you can speed the process of her application for health insurance via the State of Missouri. We need your help to get her approved asap.  It is a matter of life or death that this young girl in our community have insurance.  She is a vibrant member of the her community who hopes to be a counselor to families and children.  We need you to make calls, wake people up, and rally for Emily Snider.

Thank you for your time and effort.  We look forward to seeing Emily with health care insurance asap!

Peace be with you-



List of Senators and Representatives;

Vicki Hartzler 1-220-225-2876 For Vicky, I went to her website and typed “email” in search bar and filled out form


Donna Pfautsch 1-573-751-9766 Donna.Pfautsch@house.mo.gov

Roy Blunt 1-202-224-5721
Blunt, website and then contact is under the drop down menu, fill out form.


Claire McCaskell (has an office in KC at 4141 Penn Ave, KC, Mo)  1-816-421-1639  or her DC number is 1-202-224-6154 senator@mccaskill.senate.gov
 

  **We would like to start to rally.  These are the ways you can help us: 

  •  Email this letter once to each of our reps that hold state and federal office by copying and pasting this letter.  Do this today and continue to send them daily until Emily has insurance.

    Make a phone call to one or all of the reps.  You can do this once or daily. We want them inundated.

    If you live or work in KC and would drop into Claire McCaskills office to be Emily's voice and drop off a copy of the letter personally. McCaskill has an office at 4141 Penn, KC, Mo. 

    Share on your social media daily with the link to this letter for others to rally behind Emily.  

    Use the #healthinsurance4Emily #epilepsy on social media ; Facebook, Twitter, Instagram, and any others

    Contact these reps via social media.  They all have Facebook pages and Twitter accounts.  Copy & Paste this letter on their Facebook page.  Tweet them with  #healthinsurance4Emily #epilepsy.  


 

Friday, November 17, 2017

Peter Pan Is A Liar




I adore this title...why?  It encompasses my past year spent in solace, grace, and forgiveness with my Heavenly Father.  Through the radiation, chemo, lousy blood work, and even worse scans He was by my side.  He told me "you are mine".   He promised He had great things in store for me & that I had no idea all He was going to use me for.  For the first time in a long time I heard from our Heavenly Father in a deeply personal way that cornered my soul, filled my broken heart, and gave clarity to my mind. 

Just this week my darling dot had another seizure.  In my mind I knew what to do to help her.  Her head hit the marble tile in my bathroom.  Instantly I knew to drag her from where she hit to the wood floor so her head would stop hitting the marble.  And, when I went to drag her away by her feet and legs I didn't have the strength.  The hubs who was standing there told me to "MOVE" and got her to the wood floor.  I told him to sit on the floor and get her propped up as she was already starting to cut off her air.  He sat on the ground, picked up his precious daughter and got her propped by his strength behind her.  I got towels for the drool to wipe the blood and foam from my darling dot.  And, I wept out loud, and cried to our Heavenly Father, " Father you bring her back...bring Emily back to us. You have great things in store for her, Father" and she was back.

It left me thinking how many times has my Heavenly Father openly wept for me and cried out loud "I've got great things in store for you".  How many times has He done that for you?  I think perhaps mine started as a kid and continued a lifetime. 

Peter Pan warned "Once you grow up you can't come back".  That meant no more Neverland and adulthood in the book.  I feel like I've lived a lifetime thinking that very thing.  Locking away all those things that I adored in childhood; singing at the top of my lungs, making poms poms out of white floral bush branches, and chasing birds in hopes of catching one. Being a dreamer, loving art, being artsy, a peace punk, and a teacher.  I was reminded with the darling dot's seizure this week ; 1. We will not be broken, 2. Sherry you know the truth, 3. being filled with radiant light that warms my body, clears my mind, and sets my spirit free.  Its the realization of how graceful our Heavenly Father designed me & how he wove me.  Every chance encounter or coincidence is not that it is His majestic design and plan. And, yes, the times that I've felt alone, in despair, hurt by the world, closed in with darkness penetrating he was there saying, "Sherry you know the Truth".  Within the past year I've heard that spirit that lies within me that reminds me of the truth and reveals himself to me as I gain trust, confidence, and light. 

Yes, dear souls, Peter Pan is a liar.  You can go back to your true self as you were designed.  If you feel lost tell our Heavenly Father "I'm lost seek me, Lord" and you will feel found.  Trust, believe, and know you are His, precious friends.  He no longer wants to weep and cry out "I've got great things in store for you" while you turn to the worldly, the darkness, and deceptive thoughts.  Fix your eyes wide open, let His light radiate you, and flood every inch of your being.  Allow yourself the chance to be his beloved.  It feels just like being a kid; free from bills...can I get an amen for that? But it is the warmest light you will ever feel, the gentlest nudge on your heart that sets it back to where it was, and grace to love others with his grace. 

Peace be with you- Sherry

Updates:

  • I had my consult this week.  My scan showed my intestines are clear  and the nodules in my stomach have shrunk.  And, for the first time in two years my blood work looks almost like a normal person.  My oncologist said the scan was good news but he was really encouraged when he got my blood work back because it looked really, really good.  He told me that we could continue chemo but that means that my immunity would be gone rather than compromised.  He said he knows me and what I love to do and want to do with art therapy and my artroom.  He asked if I felt like I had quality of life.  He told me that he felt encouraged to give me a chance at quality of life with a three month break from infusions if I ; took oral meds, got weekly blood work, and called if I feel crappy, get a cold, etc.  He said he felt confidant that the nodules will hold where they are which is smaller than they have ever been.  My other option is to continue infusions, kill off my immunity, put any thoughts of teaching art on hold for another 6 months to a year or to choose "quality of life".  I chose quality of life and am believing all is well & will be restored.
  • We are still battling to get Emily disability health insurance because of her epilepsy diagnosis.  She has three seizures in the past two months and it is becoming apparent she desperately needs a specialist which requires insurance.  Pray for healing, safety, and courage for Emily.
  • Dale is looking into college at Northwest Missouri State or community college for the first couple of years so we can afford KU eventually.  He is filling out scholarships and we are trusting God to place him where he intends.
  • I will be posting Artroom classes over the weekend. The kids & I will be at a Vendor Blender in Pleasant Hill , Mo this weekend doing make & takes that highlight The Artroom.  I will also be engraving key necklaces at the event.  We would adore for you to come out and say hi & encourage my soul.





Saturday, November 4, 2017

Kingdom Come


 And God said, "Let there be light," and there was light.





Remember that part of the Lord's prayer that says "thy kingdom come on earth as it is in heaven"? That reference has freaked me out since I was a kid.  As a kid I believed that we were praying for an end of the earth.  As, I got older, I learned more about the prayer, the symbolism of the words but still came to the same conclusion that we were praying literally for Revelations to happen before our very eyes.  I thought how sick and morbid is that?  That we as believers are chanting for Revelations and the end of times?

Didn't the adults read the bible and know what long term suffering they are praying for.  And, I'll admit as a teenager and college kid I often omitted speaking those words because of a silent fear that I had from them.  What if God did come? What if I wasn't worthy enough? What if I had to relive all the "transgressions" I'd made to God, my family, and friends. Can you say "no thank you" and just move on?

It appeared to me that it was far better to live in the earthly worldly realm than to ever live in "heaven". To bring heaven on earth would mean not knowing where you were going to live, whose ultimately with you and who perishes.  And, what if I was one that perishes?  Geez, Lord, I don't want that.  With the birth of my kids I felt compelled to teach them of a love of the Lord that they would trust him far greater than myself or their earthly dad.  That they would grow in that trust and be compassionate, smart, and capable kids that would turn into smart, compassionate, and capable adults.  I would pray over each of them that would be a reflection of our Heavenly Father on earth knowing full well in my heart that I wasn't that.  I had done too much, made deal changing decisions that would vest me in the earthly rather than the heavenly. But my kids, yeah, God loved them more than their sinful mom and they would be among that are saved.

As, I type that, I realize how much value I placed on my own definitions and how little on God's mercy and forgiveness.  I'd quarrel to my final breath that God had forgiveness for each and every sinister soul in the world. But, when it came to me, well, the phrase, "ain't got time for that" is exactly what I knew in my soul God would say.  I had made my decisions even though I knew they would be a life without heaven.  So, yeah, me praying "they kingdom on earth as it is in heaven" forget that.  I didn't want to leave the earth because I knew within every fiber of my soul that I wasn't going to Heaven.

It took me turning 40 something, being dealt a possible cancer diagnosis, and having my daughter ready to start college that I had an epiphany.  A deal changer.  I hadn't been going to church because I felt I was a "fraud" and mocking God.  How could all this be happening?  Quite simply God was going to "make thy kingdom on earth as it is in heaven" and I was going to face his wrath.  All the people that I knew and loved would see my fall, know my shame, and know what a fraud I was.  It was truly unbearable.  I was living not in the world but in darkness.

I was challenged to say the least.  My son asked me to go to church with him and I had refused playing it off to him that I wasn't feeling well.  Truth be known I wasn't feeling well physically but soufully I was feeling worse.  This particular Sunday he kept prodding me and so after a few months of not going I went to appease my kid.  I went and was challenged with a sermon on God's mercy and forgiveness.  Normally, I would have written it off and it would have fallen on deaf ears.  I'd only spent half of my life knowing that God had wrote me off, cast me away, and now I was feeling his wrath physically, mentally, and soulfully here on earth.

Instead, my ears perked up to a revelation.  God's grace and forgiveness is enough all you have to do is believe that is so.  It was a light bulb moment what if that is true?  What if God's forgiveness includes me? What if he didn't cast me off?  Could I dare to trust him that it would be so?  And, I thought, yeah, why not and it was a deal changer.  I rested soundly knowing I was forgiven and believed that God would heal me and I could go on. 

I soundly took my daughter took my daughter to college that fall.  I soundly went back to my doctor and told them I was ready for surgery.  I soundly went to sleep at night knowing I was forgiven. I had my surgery and learned the mass that was size of a grapefruit on my left ovary burst.  My daughter had a seizure in in algebra class in college.  She was unresponsive, stopped breathing for 15 minutes, and had to be taken to a hospital in an ambulance.  My husband had a job that was demanding and couldn't take off work for to go to get our daughter and I didn't have a car that could get me there. We got our daughter home and were told by a specialist that she had epilepsy and we refused his diagnosis. My husband couldn't take off work when I went back to the doctor to learn the results of my biopsies where I learned I had ovarian cancer and quite possibly those cancer cells would or could spread because of the mass bursting.  Three months of that diagnosis I had cancerous cysts that were removed from my intestines and I was put on chemo meds. A month later those meds were no longer covered by my insurance and within two months our health insurance for our family was discontinued.

I had a come to Jesus talk with Jesus. You want me to believe that I'm forgiven?  That you love me?  That you love my daughter and son more than me but all this is happening? If you are a God of love and forgiveness what is wrong with you?  And, I heard, "how much goodness graciousness do you need?". I looked around my home and thought you have a place to call home. You have an artroom to be creative, you have kids that love you, a hubby that works his tail feathers off.  You have been a teacher, you write curriculum, you write a blog, and you've worked creatively.  Yeah, that being said, that's a whole lotta goodness graciousness that was God given and approved in my life.

I gained insight of the love and began to praise the Lord for all that I have and with all of my heart.  I was blessed with health insurance for my son and myself.  I was blessed when I had a second surgery to remove even larger cancerous cysts from my intestines.  I was blessed through chemo and radiation, for friends that helped us pay for car repairs, and cried with me when I didn't have a car to get me to chemo, and gifted me a car. God blessed me with my daughter who returned home from college because we couldn't pay for it and my medical treatments.  God blessed my daughter with Voc Rehab scholarship for people with disabilities so she could go to a community college near home.  God blessed her with seizures and the capability of us being able to take care of her when it happens because she lives with us.  We are blessed that she was approved for meds to take to try to stop the seizures. I was blessed when they told me I had cancer nodules in my stomach and cysts in my intestines again because I could do chemo and radiation to try to stop them from spreading further or growing more.

Why, do I say blessed?  Because over the course of almost three years I learned what his goodness and graciousness means.  It sets me apart from the world and darkness.  It refuses to let me encompass myself in darkness or believe that God calls me anything but beloved.  It means that when my daughter got a diagnosis of epilepsy after these three years that I accept it.  It makes me fight harder to get her health insurance through the state for that disability.  It allows me to say my daughter has a disability that could kill her but I know she is always free in the Lord.  It gives me hope when I was told that I was approved for a new round of chemo to potentially kill all the cancer from my body and it would only be $7,000 total rather than $150,000 for the meds alone.  It makes me fight that much more for my family and friends that believe that hope is gone and lost.  Who say that "Satan wins" because, dear friends, that is what darkness and the world says....we as believers do NOT and will NOT allow those words to be issued to us, for us, or about us.  When Satan comes and the world starts to darkening around you.  When it feels like all you see is a speck of light....that is our Heavenly Father who roars for you like a lion.  He roars in resounding hope that none of us have to live in our own created hell on earth.

Instead, he challenges us through adversities to be who he designed.  That we might meet our challenges with trust and hope in Him.  Recently, my husband confided in me that the darkness is overwhelming him and that he sees no hope.  He sees his wife is sick with the possibility of dying from cancer and she is his light and hope.  I had to reaffirm it is not my light or my hope it is our Heavenly Father whose light resides in each of us.  We have to access that light because its truth.  And, sometimes it is only a flicker but it is there....it is the true eternal flame.

My word today is that I openly pray daily for "thy kingdom come on earth as in heaven" not as a chant for destruction of the earth because those things have started with Christs accession into heaven long ago.  What I believe by raising my hands to the Lord each morning and saying "Let there be light, Lord.  Let your kingdom come on earth as in heaven" is personally inviting his light to shine like a beacon to my mind, my heart, and my soul daily.  It allows me to hope the best in all things, to see the best in all things, and to be his daughter.  It challenges me to drop all the petty, mean, and time wasters and fill my days to renew, replenish, and to radiate his love in my lifetime.  Are you with me....let there be light, Lord, allow your kingdom to come on earth as it is in heaven. 

Peace be with you- Sherry